Resources

Information and resources to support inclusion of individuals with intellectual and developmental disabilities in the District of Columbia.

The Georgetown University Center for Child and Human Development University Center for Excellence in Developmentyal Disabilities (UCEDD) has evaluated these links for the usefulness, reliability, and timeliness of the information they present, and the ease with which visitors can access information and navigate them.

This list is not intended to be comprehensive; rather, it offers a sample of quality sites that are useful starting points for those interested in the following topics:

For access to more information on various topics, see our Resources, A-Z page.

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bullet Associations, Administrations and Organizations

Local Agencies, Adminsrtations and Organizations

The District of Columbia Department on Disability Services (DDS)
The mission of the DDS is to provide innovative, high quality services that enable people with disabilities to lead meaningful and productive lives as vital members of their families, schools, workplaces and communities in every neighborhood in the District of Columbia. dds.dc.gov

District of Columbia Developmental Disabilities Council
Each State has a Developmental Disabilities Council to advance the inclusion of people with intellectual and developmental disabilities in their community ddc.dc.gov

District of Columbia Office of Disability Rights
This office of the Government of the District of Columbia ensures that all activities operated or funded by the DC government are fully accessible and usable for people with disabilities. Visit their website for a full description of their services odr.dc.gov

DC Department of Human Services
This is the District of Columbia Government department that administers the social service programs for residents of DC that need income, health care, food, family service, rehabilitation and disability related help. dhs.dc.gov

Office of the State Superintendent of Education” (OSSE)
The State Department of Education for DC. This includes the early childhood education, child care, early intervention and special education among others. They also house the State Board of Education. osse.dc.gov

Early Learning
This DC agency supports child care and early intervention in DC for children 5 and under and manages the subsidized child care program. http://osse.dc.gov/service/early-learning

Elementary, Secondary & Specialized Education
This office of OSSE is working with the DC Public Schools and Charter schools in the city to put into places improvements to the special education program to meet the needs of all students with special needs
http://osse.dc.gov/service/elementary-secondary-specialized-education-esse

Strong Start, DC Early Intervention Program
The early intervention program in the District of Columbia is for children birth to three who have delays in development or disabilities regardless of income. Provides evaluations, services and Individualized Family Service Plans (IFSP). See the website for eligibility and referral information. http://osse.dc.gov/service/strong-start-dc-early-intervention-program-dc-eip

DC Department of Health
This department provides many health related services for DC residents including health care services for the uninsured, programs for mothers and children and assistance with accessing immunizations doh.dc.gov

DC Public Schools
Public school system for the District of Columbia. The website features a page on the Office of Special Education and Early Stages center for referring young children over the age of three who may have developmental delays or disabilities. dcps.dc.gov

DCPS Office of Special Education
Provides evaluations, Individual Education Programs (IEP) and services for school aged children with special needs.

DCPS Early Stages
DCPS's child find initiative and part of the Office of Special Education. Children three to five years old are screened and if necessary, evaluated for delays or disabilities that would require special education services. www.earlystagesdc.org

DC Child and Family Services Agency
This agency provides child protective services, foster care and adoption programs in the District of Columbia. Information about becoming an adoptive/foster parent or reporting child abuse and neglect can be found on the home page. cfsa.dc.gov

Quality Trust
Advocacy organization for individuals with developmental disabilities and their families. They provide advocacy services and other supports and information. dcqualitytrust.org

Project ACTION!
Self-advoacy coalition that meets in the District of Columbia around issues in the Metro area including jobs, health care, education, and more. For more information about Project ACTION! email Phyllis Holton or call 202-448-1458 (direct). dcqualitytrust.org/advocates/join-project-action

Georgetown University Center for Child and Human Development
The mission of Georgetown University Center for Child and Human Development is to bring together policy, research and clinical practice for the betterment of individuals and families, especially children, youth and those with special needs including: developmental disabilities and special health care needs, mental health needs, young children and those in the child welfare system.http://gucchd.georgetown.edu/

National Associations, Centers and Organizations

American Association of People with Disabilities (AAPD)
Works with many of the disability organizations for enforcement of the disability non-discrimination laws. The website has resources and information on membership. http://www.aapd.com/

The Association of University Centers on Disabilities
This association promotes and supports the national network of university centers on disabilities, which includes University Centers for Excellence in Developmental Disabilities Education, Research, and Service (UCEDD), Leadership Education in Neurodevelopmental and Related Disabilities (LEND) Programs and Developmental Disabilities Research Centers (DDRC). http://www.aucd.org

Administration on Intellectual and Developmental Disabilities (AIDD)
US government organization responsible for implementing the Developmental Disabilities Assistance and Bill of Rights act of 2000. It is part of the Administration for Children and Families of the US Department of Health and Human Services. http://www.acl.gov/Programs/AIDD/Index.aspx

American Association on Intellectual and Developmental Disabilities (AAIDD)
Interdisciplinary organization of professionals and citizens concerned about policies, research, and effective practices that promote the full inclusion of individuals with intellectual and developmental disabilities in society. https://aaidd.org/

The Arc of the United States
A national organization that advocates for the full participation of all people with mental retardation and other related developmental disabilities. This site has a publications section with English and Spanish publications and a newsletter. It also has information on health related issues like DD and aging, Alzheimer’s, and women’s health. http://www.thearc.org

The Arc of DC, Inc.
The local association of the Arc provides services and programs for people with intellectual and developmental disabilities in the District of Columbia. The website also contains information on advocacy and policy. http://www.arcdc.net/

Center for Parent Information and Resources
Central resource of information and products for the Partent Training Information Centers and Community Parent Resource Centers for families of children with disabilities. http://www.parentcenterhub.org/

Clearninghouse for Home and Community Based Services
This site contains information and clearing house of resources and publications on topics related to community living. http://www.hcbs.org/

Institute on Community Integration
A center dedicated to improving community services and social supports for persons with developmental disabilities and their families in the in the US and abroad. They house programs for people of all ages and include early childhood, school age, transition and adult and community living information and resources. This center is a University Center for Excellence in Developmental Disabilities at the University of Minnesota.
http://ici.umn.edu

National Center for Cultural Competence
Resource for health and mental health programs to design and provide services in a manner that is culturally and linguistically competent.
http://nccc.georgetown.edu/

National Federation of the Blind
National membership organization of people with blindness. This site contains resources and information about vision loss. https://nfb.org/

National Association of the Deaf
National membership association for people with hearing loss and deafness. This site has information and resources about deafness.
http://www.nad.org/

National Association for the Dually Diagnosed (NADD)
This organization has information, events, publications and resources for consumers, families and service providers around issues related to mental wellness and mental health care for persons with intellectual and developmental disabilities. http://www.thenadd.org

National Association of Councils on Developmental Disabilities
The Web site of the NACDD, whose mission is to promote national policy which provides individuals with developmental disabilities the opportunity to make choices regarding the quality of their lives and be included in the community; and to provide support and assistance to member Councils. http://www.nacdd.org

Rehabilitation Research and Training Center on Aging with Developmental Disabilities
A national resource for researchers, planners, providers, self-advocates, families and students in the field of aging and developmental disabilities. Provides information, resources and research related to aging and developmental disabilities. Also has information on training and events.
http://www.rrtcadd.org/

bulletEducation and Early Intervention

For more information on this topic, see our Education and Early Intervention Page

Early Childhood Technical Assistance Center (ECTA Center)
Supports the implementation of the early childhood provisions of the Individuals with Disabilities Education Act. http://ectacenter.org/

Gallaudet University's Laurent Clerc National Deaf Education Center shares the concerns of parents and professionals about the achievement of deaf and hard of hearing students in different learning environments across the country. The Clerc Center has been mandated by Congress to develop, evaluate, and disseminate innovative curricula, instructional techniques and strategies, and materials to improve the quality of education for deaf and hard of hearing children and youth from birth through age 21.
http://clerccenter.gallaudet.edu/

bulletHealth

See our Health Information and Resources Page

For access to more inforamtion on various health topics, see our Resources, A-Z page

Center for Disease Control and Prevention
This Center is part of the US Department of Health and Human Services.  It's web page contains information specifically on developmental disabilities which can be found at: http://www.cdc.gov/ncbddd/dd/default.htm
In addition, the site contains information on specific disabilities like autism and cerebral palsy.  They also have an Autism and Developmental Disabilities Monitoring Network (ADDM) which is found at http://www.cdc.gov/ncbddd/autism/addm.htm.

Social Security Income (SSI) and Social Security Disability Insurance (SSDI)
This is a list of links that explains SSI and SSDI and the sites included one with a screening tool.

http://www.ssa.gov/disability
http://www.socialsecurity.gov/ssi/
http://www.ssa.gov/pubs/11000.html
http://www.ssa.gov/dibplan/index.htm
http://www.ssa.gov/planners/index.htm

bullet Community

Art and Drama Therapy Institute, Inc.
Day treatment program for people with intellectual and developmental disabilities in Washington, DC. The institute approaches care and treatment for adults with mental retardation through the visual and theatrical arts. http://adtinet.com

Catholic Charities Archdioceses of Washington, DC
Catholic Community Services provides services for children, youth and adults with developmental disabilities in the District of Columbia.
http://www.catholiccharitiesdc.org/

DC Coalition for Community Services
Organization to promote community-based services for people with disabilities in the District of Columbia. For more information contact Arthur Ginsberg (aginsberg@sjcs.org or 202-274-3460) or Ron James (rjames61953@yahoo.com or 301-602-2228).

District of Columbia Center for Independent Living (DCCIL)
Provides independent living skills training, peer counseling, advocacy and legal, and information and referral services for people with significant disabilities in the District of Columbia. http://www.dccil.org

bullet Individual, Family, and Sibling Support

Autistic Self Advocacy Network
Advocacy organization of people with autism. Resources, policy, projects and membership are available on the webiste. http://autisticadvocacy.org/

Autism Society of America
Grass roots organization dedicated to increasing public awareness about autism and the issues individuals with Autism face.
http://www.autism-society.org/

DC Chapter http://www.autism-society.org/chapter130/

Best Buddies
An organization that promotes friendships and employment for people with intellectual disabilities. The programs include matching programs for people from middle school to senior citizens to create one-on-one friendships. http://www.bestbuddies.org

Family Voices, Inc
Family Voices is a grass roots network of families, friends and advocates who work toward ensuring health care services for children and youth with special health care needs are family-centered, community-based, and comprehensive, coordinated and are culturally and linguistically competent. It supports partnerships between families and professionals to achieve their goals. http://www.familyvoices.org/  

Federation for Families for Children’s Mental Health
National organization run by families dedicated to helping children with mental health needs and their families achieve a better quality of life.
http://www.ffcmh.org/

Sibling Support Project
This is a national project to peer support and information to siblings of people with special needs and to provide information for parents and providers about sibling issues.  The site provides information on workshops, a list serve for siblings, stories by siblings and other support. 
http://www.siblingsupport.org/

 

bulletRecreation and Travel

The Guided Tour, Inc.
Travel services for persons with developmental and physical challenges. http://www.guidedtour.com

Special Olympics International, Inc.
An organization that provides fitness and sports programs for children and adults with intellectual disabilities. They also host international competition for the athletes. http://www.specialolympics.org

Sprout!
This organization is based in New Your City, but provides programs for individuals with intellectual and developmental disabilities around the US to participate in leisure and travel experiences. They provide group vacation and other leisure programs. http://www.gosprout.org

Disability Travel and Recreation Resources
A web page about information for people with disabilities and their families put together by a man with a disability. This page of the website offers travel links and information. http://www.makoa.org/travel.htm

US Department of Homeland Security, Transportation Security Administration (TSA) section on travelers with disabilities has more information.

http://www.tsa.gov/travelers/airtravel/specialneeds/index.shtm

Way to Fly
Flying Guide for Travelers with Disabilities
Traveling & Flying Solutions for Families
Website that provides travel tips for all travelers created a guide for travelers with disabilities and for families, including families who have members with autism.
http://www.waytofly.com/articles.php?tip=flyingguide

bullet Religion and Spirituality

Yachad, The National Jewish Council for Disabilities.   NJCD strives to enhance the life opportunities of people with special needs and to insure their participation in the full spectrum of Jewish life.
http://www.njcd.org/

The National Catholic Partnership on Disability (NCPD). 
The NCPD was established in 1982 to further implementation of the 1978 Pastoral Statement of U.S. Catholic Bishops on People with Disabilities, which calls for full inclusion of all persons with disabilities in the Church and in society.  The NCPD site has news, information and resources and presents Catholic perspectives on disability issues.  http://www.ncpd.org/

American Association on Intellectual and Developmental Disabilities, Division of Religion and Spirituality
Interfaith resources and information about supporting people with developmental disabilities in their spiritual and religious lives.
http://www.aaiddreligion.org

 

bulletTechnology

Assistive Technology Program for the District of Columbia
This link has information about the Assistive Technology program for people of all ages that live in DC.  The program is managed by University Legal Services (ULS).  The program includes an assistive technology lending program, is developing an equipment recycling program and provides assistive technology evaluations and services.  http://www.atpdc.org/

Center for Applied Technology (CAST)
Research and development of technology to enhance all individuals’ opportunities to learn through universal design for learning
http://www.cast.org

Quality Indicators for Assistive Technology Services
This is the website for a group of service providers, families, and researchers that identify, disseminate and implement the Quality Indicators for Assistive Technology in school settings.  This process and tool can support the identifying, determining and implementing of assistive technology for children attending school. http://natri.uky.edu/assoc_projects/qiat/

DO-IT at the University of Washington
The Home Page for DO-IT (Disabilities, Opportunities, Internetworking and Technology) at the University of Washington, whose long-term goal is to increase the participation of individuals with disabilities in science, engineering, and mathematics academic programs and careers.
http://www.washington.edu/doit

 

bulletTransition

DC Transition.org Pathways to the Future for Youth with Disabilities
Future planning resources for youths with disabilities transitioning to adulthood in the District of Columbia. The site has stories from youth about their experiences .

Adolescent Health Transition Project
The Center on Human Development and Disability at the University of Washington has this website that provides information, timelines and resources on educational and health transitions for childhood through adulthood. http://depts.washington.edu/healthtr/

National Center on Secondary Education and Transition
This site contains information on preparing for and transitioning to post-secondary education for youth with disabilities.
http://www.ncset.org/default.asp

Center for Parent Information and Resources: Transition to Adulthood
Information on transition from childhood to adulthood for people with disabilities.
http://www.parentcenterhub.org/repository/transitionadult/

Video Tips: Guidance for Adolescents as They Transition to Adulthood
To help youth and young adults, family members and caregivers understand the many important issues they face prior to and during transition to adulthood, Nemours/Alfred I. duPont Hospital for Children, together with community partners and youth/young adults with disabilities and their families, developed four transition videos available on YouTube. The videos cover four main areas: Legal/Financial, Residential, Vocational and Medical Self-Management. http://www.nemours.org/about/mediaroom/press/dv/transition-videos.html

bullet Employment

For more information, see our Employment Page

Job Accommodation Network
A service of the Office of the Disability Employment Policy of US Department of Labor to assist in the employment and retention of workers with disabilities. The site provides information on job accommodations, self employment and small business ownership for workers and their families as well as employers. http://janweb.icdi.wvu.edu

bullet Aging

DC Aging and Disability Resource Center
Provides information about long term care and other services for adults over 60 and persons with intellectual and physical disabilities. See http://dcoa.dc.gov/page/aging-and-disability-resource-center-adrc for more information.