Publications & Products

This list presents current, high quality publications or links to publications that are useful starting points for those interested in the following topics:

• GUCEDD Newsletters
• New Products
• Advocacy
• Early Intervention
• Employment
• Health
• Family
• Assistive Technology
• Transitions
  

New Products

UCEDD Self-Determination Checklist
A tool for UCEDDs and other organizations to look at the degree to which its policies, practices, and personnel are promoting the self determination of people with intellectual and developmental disabilities and their families. Click here for the tool.

Advocacy

Framing Disabilities: The Influence of the Media
This lively and timely symposium explored issues related to the representation of persons
with disabilities in the media and how this representation influences the
public’s attitudes. Speakers included individuals with disabilities, journalist and family members Judy Woodruff and Leon Dash, and a diverse group of faculty from Georgetown University and other area universities. Click here to download a copy of the proceedings (PDF).

Early Intervention

• A Resource Guide for Professional Development
• Annotated Bibliography of Early Intervention Web Sites
  Early Childhood Intervention Resources
• Early Intervention Personnel Preparation Training Activities
• Family Activity Brochures

See our other products and links to resources on our Education and Early Intervention Information and Resources Page

Employment

Impediments to Employment and Job Retention for Individuals with Intellectual and Other Developmental Disabilities
The Georgetown University Center for Excellence in Developmental Disabilities Consumer Advisory Council Created a document on impediments to employment and recommendations to reduce barriers for individuals with intellectual and other developmental disabilities.

See our other products and links to resources on our Employment Page

Health

See our Health Page for more products

Oral Health Video and Study Guide
The DDA Health Initiative has created video and print materials for all people to understand and care for their oral health.

Physical Activity and Sport for People with Disabilities: Symposium and Strategic Planning
The Athletic Equity Symposium held in June 2011brought together diverse academic, administrative, organization, and education experts as well as advocates and athletes with disabilities to discuss policy issues and changes that can be made at the national, state and local levels to ensure full participation of children, youth and young adults in sports and physical activity. A strategic plan was created to accomplishing the goal of full participation in sports and physical activity. Click here to read these proceedings and the strategic plan from the meeting. The last page of the proceedings document contains links to other resource documents used to inform the discussion.

Move Experience Engage
An exciting new publication that is a calendar of 365 activities designed to be used by individuals providing services to adults with developmental disabilities in community-based residential facilities.  It includes a variety of fun and engaging activities like exercises, cooking and community activities that will help promote health and a sense of well being. A list of exercises and photographs illustrating the exercises is also included.

Sensational Ideas

A exciting new checklist and activity guide designed to be used by individuals providing services to adults with developmental disabilities. The activities use pleasant scents, sounds and other means to calm, soothe, relax or energize individuals. Click here to download the activity guide and checklist

Family Food and Fitness A family guide that has information about healthy eating, recipes, and activities. For families with young children of all abilities This guide provides families with information about healthy eating and active lifestyles. It is our hope that families will use this knowledge to help them buy fresh food, prepare nutritious meals, and have fun being active. We encourage families to include their children while they shop for food, prepare meals, and cook. Children who participate in cooking enjoy eating and make healthier food choices. The manual includes information about: Nutrition Recommendations Food Safety Meal Planning and Preparation Budgeting Physical Activity

Health Fact Sheets Developed by UCEDD in English and Spanish:

• Building a Partnership With Your Child's Doctor (1 page pdf; 92 KB)
  En Español: Cómo Pueden Trabajar Juntos Uested y el Doctor de su Hijo(a)
• Creating a Health Notebook for Your Child (2 page pdf; 108 KB)
  En Español: Como Crear Una Libreta de Salud Para su Hijo(a)
• Getting the Assistive Technology Your Child Needs: How Your Primary Care Provider Can Help (2 page pdf; 116 KB)En Español: Cómo Recibir la Asistencia Tecnológica Que Su Hijo(a) y Cómo su Doctor Primario Puede Ayudar
• It Takes a Village! Finding the Community Resources Your Child Needs (1 page pdf; 92 KB)
  En Español: Necesitamos una Comunidad: Como Encontrar los Recursos en la Comunidad Que su Hijo(a) Necesita
• Making the Change: From Children through Adolescence to Young Adults with Special Health Care Needs (2 page pdf;108 KB)
  En Español:Haciendo el Cambio: De Niños, a Adolescentes, a Adultos con Necesidades Especiales de Salud
• A Medical Home -- Not Just a Place (1 page pdf; 96 KB)
  En Español: Un Hogar Médico -- Es Mas Que un Lugar

Health and Wellness for Individuals with Disabilties: An Annotated Bibliography of On-Line Resources
Individuals with disabilities are interested in attaining and maintaining a healthy lifestyle. Participating in physical exercise and activity, maintaining good nutrition, managing stress, and creating social supports are important to promote health and wellness. Finding appropriate activity, wellness, and health promotion information that pertains to their unique needs can be challenging for individuals with disabilities, their families, and service providers. This document health and wellness information specifically geared for people with disabilities.

Family

The National Center for Cultural Competence Policy Brief: Cultural and Linguistic Competence in Family Supports This Web document addresses the issues of cultural and linguistic competence in providing family supports to children and youth with special health care needs and their families. Numerous vignettes illustrate the policy issues. In addition, links within the document connect the reader with more in-depth information in the form of PowerPoint slides. This document is available on the NCCC website.

Beyond Forest Haven The District of Columbia was one of the first jurisdictions in the country to close its institution for people with intellectual and developmental disabilities. This video and companion study guide look back at the history of the closing of Forest Haven and the journey to build a better life in the community for individuals with developmental disabilities.

Assistive Technology

The Consortium for Children and Youth with Disabilities and Special Health Care Needs was a multi-center research effort that included the Georgetown University Center for Child and Human Development, the Heller School at Brandeis University, the Institute for Child and Health Policy at the University of Florida and Family Voices.  Although the Consortium is no longer active, many of the products and publications they produced are good resources for families and providers. 

Below are links to their publications about assistive technology.

• Assistive Technology for Children with Disabilities and Special Health Care Needs: Introducing the Consortium's Annotated Bibliography on Audiovisual Resources (Consortium brief 12) and the annotated bibliography: Assistive Technology Annotated Bibliography: Videotapes and Compact Disks
• Promoting Assistive Technology in an Outcome Driven Model of Service Delivery (Consortium brief 13)
• Long, T. (2003). Web Based Resources for Assistive Technology:
  • Download document (Word)
  • View Web version (HTML)

Transitions

Transition
The Georgetown University Center for Excellence in Developmental Disabilities Consumer Advisory Council Created a document on the state of transition for youth and young adults for individuals with intellectual and other developmental disabilities and recommendations to reduce barriers and imporve the process. Click here to read or dowload.

The Consortium for Children and Youth with Disabilities and Special Health Care Needswas a multi-center research effort that included the Georgetown University Center for Child and Human Development, the Heller School at Brandeis University, the Institute for Child and Health Policy at the University of Florida and Family Voices.  Although the Consortium is no longer active, many of the products and publications they produced are good resources for families and providers. 

Below are links to their publications about assistive technology.

Brief 9 Promising Practices in Health Care Transition: A Project Brief

Brief 1 Promising Practices in Health Care Transition: A  Research Fact Sheet for Consumers