This list is not intended to be comprehensive; rather, it offers a sample of quality resources that are useful starting points for those interested in the following topics.
Accessibility and Mobility
Easter Seals Project Action: Bus stop accessibility assessment Toolkit and Bus Stop Check lists from Easter Seals Project Action which strives for accessible community transportation. The tool kit is available for download in pdf or text versions or print copies can be ordered for free.
United We Ride: This is the website for the Coordinating Council on Access and Mobility (CCAM) which is charged with coordinating efforts for human service transportation for individuals with disabilities and other citizens. The website contains information about policies, resources, and emergency preparedness as it relates to transportation. See their resources at Untied We Ride Fact Sheets
- What is assistive technology?
- Steps for making decisions for assistive technology
- Assistive Technology Support in the District of Columbia
- Assistive Technology Device Examples
- Family Guides to Assistive Technology
- Center on Technology and Disability http://ctdinstitute.org/
- Center on Technology and Disability http://ctdinstitute.org/
- Evaluating the effects of a structured program for adults with autism spectrum disorders and intellectual disabilities
- Coping Strategies of Adults with Mild Intellectual Disability for Stressful Social Situations
- Functional Behavioural Assessment in People With Intellectual Disabilities
[Mental Retardation and Developmental Disorders]
- Using Motivation Interviewing to Promote Patient Behavior Change and Enhance Health
The American Association on Health and Disability (AAHD) is the recipient of a grant from Susan G. Komen for the Cure entitled, “Project Accessibility: Removing Barriers for Women with Disabilities”. The purpose of the grant is to increase accessibility of mammogram facilities in the DC Metro area. AAHD has developed a Breast Cancer Screening Women’s Survey to help gain a better understanding of what types of barriers are keeping women with disabilities from getting their mammograms. If you are a woman with a disability and reside in Washington, DC or the surrounding Metro areas (District of Columbia, Alexandria City, or Prince George’s, Fairfax, Loudon, Arlington or Prince William Counties). Please visit http://www.surveymonkey.com/s/G77ZLF3 to fill out the short survey.
Breast Health Care: Easy to Read, Easy to Understand (PDF) Brochure for individuals with intellectual and developmental disabilities about preventative care for breast health. Sponsored by the Susan G. Komen for the Cure Foundation and written by the National Office on Disability and Health, Chapel Hill, NC.
Ask Medicare has a new set of resources for caregivers. This web site has a video of one family’s story, and highlights programs and resources improve a caregiver’s well-being. It also has a links to services available for caregivers and care recipients through the HHS Administration on Aging, HHS Centers for Medicare & Medicaid Services and other state and local programs. For more information visit the site at www.medicare.gov/caregivers
Special supplemental issue of Developmental Medicine and Child Neurology devoted to adults with Cerebral Palsy edited by Dr. Laura Tosi from Children's National Medical Center
The Elizabeth M. Boggs Center on Developmental Disabilities
- The Geese and the Peanut Butter Chocolate Ice Cream: The Grieving Gifts to the Lexington Street Community A Resource to Help Individuals with Developmental Disabilities and People Who Support Them Grieve the Death of Loved Ones, 2006, written by Melody A. Steinman; illustrated by Pat Schosser
- Why Does Medicaid Matter To People with Disabilities and Their Families, 3rd Edition, March 2011 (Spanish)
The Centers for Disease Control and Prevention have published the 2006 Disability and Health State Chartbook: Profiles of Health for Adults with Disabilities.
See our project page on the Georgetown University Early Childhood Intervention Professional Development Center, DC Strong Start Comprehensive System of Personnel Development (CSPD) for more information on this topic
See our webpage on Employment
Autism Safety Project
Autism Speaks started the Autism Safety Project which provides first responders with information and guidelines for communicating with individuals with Autism Spectrum Disorder (ASD) in emergency situations. One-page fact sheets can be emailed or printed for distribution to law enforcement, firefighters, emergency medical services, and others.
Emergency Check List (2006)
A helpful checklist for emergency preparedness for people with disabilities and persons aged 65 and older appears at the end of the newsletter.
End of Life Planning
- Complex Moral Issues: End-of-Life Decisions for Adults with Significant Intellectual Disabilities
- Inclusion Preparedness Center: Emergency Preparedness for People with Disabilities and other Vulnerable Populations works to ensure that all individuals are included in the development and implementation or emergency and disaster plans including evacuations and sheltering and consideration of the communication, transportation and medical needs of persons with disabilities, and other special populations.
- US Department of Transportation Emergency Preparedness and Individuals with Disabilities. The information on this site is intended to inform people with disabilities about the federal government’s efforts to work with the disability community around emergency preparedness
- Saving Lives: Including People with Disabilities in Disaster Planning (NCD’s 2005 report)
- Fall Prevention, Assessment and Intervention for Falls, specifically for Adults with Developmental Disabilities, by Victoria Lamb, Doctor of Physical Therapy student.
- Center for Disease Control and Prevention Resources on Fall Prevention
- Fall Prevention in Older Adults fact sheets and resources
- Developing Community-based Fall Prevention Programs (PDF)
- Home and Recreational Safety compendium of effective community-based interventions, brochures, podcasts, and community prevention programs
- Fall Risk Assessment Guidelines
- Fall Management Guideline in the National Guideline Clearinghouse, Agency for Healthcare Research and Quality
- Ahead of the Curve: Emerging Trends and Practices in Family Caregiver Support
Some states incorporate caregiver support services into their programs that serve older people or adults with disabilities; in other states, it is separate with distinct eligibility criteria. Because many states are increasing HCBS funding, policymakers and administrators have a strong interest in emerging trends. This report highlights three: caregiver assessment, consumer direction in family caregiver support services, and collaborations between the aging network and the health care system.
- Family Caregiver Support: State Facts at a Glance (2006)
The National Association of State Units on Aging (NASUA) in collaboration with the National Conference of State Legislatures (NCSL) and funded by the Administration on Aging, has just released a report that provides information by state about family caregivers, the state-level programs that serve them, and legislation introduced and enacted. State fact sheets from the report may be found on the NCSL website
- Revised Nutrition Guidelines for Diabetes Prevention, Stress, Weight Control, Exercise
- Information on the American Society for Testing Materials (ASTM) initiative on inclusive fitness equipment standards is available on the National Center for Physical Activity and Disability (NCPAD) website.
Flu.gov has all new season
A new interactive web portal called Genetics Home Reference from the National Institutes of Health
- Bright Futures Health Promotion: A national health promotion initiative with information and resources for families, health and mental health providers and the community regarding infants, children and adolescents. This website also contains Mental Health Tools for promoting Social and Emotional Development including What to Expect and When to Seek Help.
- These are tools for families and providers around the social and emotional development of infants, children and adolescents. It addresses when and how to seek help when there are concerns. Available in English and Spanish.
- Disability and Health Information: The Center for Disease Control & Prevention has a new page on their website about disability and health with many resources.
- TheDesk.info: E-News Update on the Medicaid Reference Desk
Check out this exciting website where you can find information about Medicaid services in your state. http://www.thedesk.info is an accessible website about Medicaid for use by people with disabilities. The site has information posted about all fifty states and the District of Columbia. The team that created this website is now in the process of updating information in each state to keep it current.
- National Center for Education in Maternal and Child Health: Provides information about children and youth with special health care needs, health promotion, injury prevention, mental health, nutrition, oral health, physical activity, school health, and program development. Provides access to Bright Futures health promotion resources, National Maternal and Child Oral Health Resource Center publications, and Healthy Start infant mortality prevention resources.
- Medical Home and Family-Centered Care: American Academy of Pediatrics has information and tools on providing family-centered care in medical homes.
- The Robert Wood Johnson Foundation's Commission to Build a Healthier America releases its recommendations to improve America's health.
Read the recommendations.
- Handbook for Women with Disabilities. Hesperian, a non-profit publisher of books for community-based health care to promote health world wide. This on line book is easy to read and understand for a wide audience.
- Health Care Management for Adults with Down Syndrome
Extreme Heat: A Prevention Guide to Promote Your Personal Health and Safety
The Center for Disease Control and Prevention highlights important safety and health tips related to extreme heat conditions.
Signs of heat stress and prevention from the Occupational Saftey & Health Adminstration (OSHA)
National Hospice and Palliative Care Organization
American Association on Intellectual and Developmental Disabilities (AAIDD) Definition and information about intellectual and other developmental disabilities.
Mental Retardation and Developmental Disabilities Research Reviews
Contains articles on diagnosis, treatment, and research into conditions affecting persons with developmental disabilities.
Long Term Care Initiative in DC
Mamography Perspectives: "its Easier Said Than Done" Perspectives on Mamomography From Women With Intellectual Disabilities.
The M.E.E. (Move * Experience * Engage) Calendar!
developed by occupational and physical therapists
365 fresh ideas for things to do! by Janet Thomas, Jamie Hall, Toby Long, and Rachel Brady
National Association for the Dually Diagnosed. Information for persons with developemental disabillties and mental health needs and their families and advocates.
National Association for the Dually Diagnosed (NADD) has numerous resources.
To visit the website, click here. In particular, check out their online training opportunities.
- Center for Science in the Public Interest – Nutrition Policy
- Dietary Guidelines for Americans 2015
- Nutrition and Diet Low-Carbohydrate Diet
Articles available through Medscape (requires registration)
- Evaluation of the Revised Faces Pain Scale, Verbal Descriptor Scale, Numeric Rating Scale, and Iowa Pain Thermometer in Older Minority Adults
- Understanding Pain in Patients with Intellectual Disability
- Evolving Changes in the Chronic Pain Paradigm
- Principles of Effective Pain Management at the End of Life
- New Research Findings in Chronic Pain: An Expert Interview With Frederick W. Burgess, MD, PhD
- New Data in Breakthrough Pain, Neuropathic Pain and Low Back Pain from APS 2007: An Expert Interview with David M. Simpson, MD
Pain Assessment Scales
Know Your Rights electronic newsletter and electronic discussion group provided by University Legal Services, the Protection and Advocacy Program for the District of Columbia. The information on the rights of individuals with disabilities is available in Spanish and English.
SENSAtional Ideas for Adults with Developmental Disabilities
Suggested activities for all the senses, arranged in a checklist format to aid in documentation!
developed by occupational and physical therapists by Janet Thomas, Jamie Hall and Toby Long
Sensory Processing in Adults with Developmental Disabilities: Is it Sensory or Behavior? Quicktime presentation now available! Powerpoint presentation with audio commentary from Janet Thomas, MEd, OTR/L, Occupational Therapist
Sibling Issues Center for Parent Information and Resources
Disability and Health State Chartbook - 2006 Profiles of Health for Adults With Disabilities
by the Centers for Disease Control and Prevention
- Information about proper transfers from DC HRP transfer training by Kenda Kittrell, physical therapist
- Proper Transfer Plan
- Lifting Techniques
- Metro Access
- MetroAccess Application
- The Metro Office of Eligibility Certification has updated the MetroAccess application form for people with disabilities who are applying for paratransit service. Information about eligibility for paratransit and the Reduced Fare Program for People with Disabilities can be found on the Metro website at the following link: Click here
Traumatic Brain Injury
Traumatic Brain Injury Resource Guide created by University Legal Services, the Protection and Advocacy Program for the District of Columbia
- The High Prevalence of Inadequate Serum Vitamin D Levels and Implications for Bone Health
- Current Medical Research and Opinion by Jean-Yves Reginster via Medscape see also Current Recommended Vitamin D Intake May Not Be Optimal CME/CE