Complex Moral Issues: End-of-Life Decisions for People with Significant Intellectual Disabilities

3. PLAN -

DecisionsWorksheet: Considerations for Quality of Life

This worksheet has been adapted with permission from the American Bar Association's Commission on Law and Aging.  It can be used to assess various medical decisions and their impact on the person’s quality of life.

These questions will help you think about situations in which you believe the person for whom you are making decisions would not want medical treatments intended to keep them alive. These days, many treatments can keep people alive even if there is no chance that the treatment will reverse or improve their condition. Thinking about the person for whom you are making medical decisions, reflect on what would be in their best interest given the situations described below, if the treatment would not reverse or improve their condition.

Directions: Circle the number from 1 to 5 that best indicates the strength and direction of what you think is in the best interest for the person for whom you are making medical decisions.

  1. Definitely want treatments that might keep the person alive.
  2. Probably would want treatments that might keep the person alive.
  3. Unsure of what to do.
  4. Probably would NOT want treatments that might keep the person alive.
  5. Definitely do NOT want treatments that might keep the person alive.

What if the person for whom you are making decisions….

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