Consumer Advisory Council

Mother child bondingThe Developmental Disabilities Assistance Bill of Rights Act of 2000, Section 154 (E) requires that the UCEDD establish a Consumer Advisory Council (CAC) of which a majority of members should be individuals with developmental and related disabilities and their family members.  In addition, the CAC should have representatives from the State Protection and Advocacy System, the State Council on Developmental Disabilities,  self-advocacy organizations, parent training and information organizations,  assistive technology centers, and other community groups concerned with the welfare of individuals with developmental disabilities and their families.  It also must reflect the racial and ethnic diversity of the State.

The CAC consults with the Director of the Center regarding the five year plan, its annual review and renewal.  The CAC comments on the progress of the Center in meeting the goals in the plan and makes recommendations for revisions.  The CAC must meet at least twice per year.

GUCEDD Consumer Advisory Council Member Highlights

We will feature highlights from our great members each year. 

  • CAC Member, Chioma Oruh, writes an opinion in the Washington Post about Education Read More

The Georgetown University Center for Excellence in Developmental Disabilities has established a Consumer Advisory Council. The CAC meets three times per year. Below is a current listing of CAC members and recent meeting dates.

  • May 29, 2019
  • September 25, 2019
  • January 22, 2020

If you would like to inquire about being a member of our CAC, please contact us at

GUCEDD Orientation for new CAC Members

Full CAC Curriculum from AUCD

GUCEDD Consumer Advisory Council Members

Consumer/Family Members

  • Bayoush Alemayhu
  • Chioma Oruh
  • Christopher DeLorenzo
  • Edmundo Ramos
  • Elsy Flores de Ramos
  • Karla Reid-Witt
  • Michelle Hawkins
  • Robert Kennedy
  • Steven Powe
  • Wilma Eley

District Government Agency Representatives

  • Lisa E. Albury, Program Manager
    Office of Programs and Policy
    Child and Youth Services Division
    Department of Behavioral Health

Department on Disability Services

  • Rebecca Salon
  • Erin Leveton, SoDA Director
    Department on Disability Services

DC Developmental Disabilities Network

  • Jane Brown, Executive Director
    University Legal Services
  • Alison White, Executive Director
    Developmental Disabilities Council

Private Agency Representatives

  • Patricia Brown
  • Cecil Doggette, Outreach Services Director
    Health Services for Children with Special Health Care Needs
  • Phyllis Holton, Deputy Director
    DC Quality Trust for Individuals with Disabilities
  • Molly Whalen, Director of Patent & Youth Engagement
    The DE Parent Training & Information Center

Service Providers

  • Marsha H. Thompson, ED
    Capitol Hill Supportive Services Program

University Representatives

  • Heidi Tseu, Director of Local Government Affairs
    Georgetown University
    Office of Government Relations and Comm. Engagement

DC Center for Independent Living

  • Richard A. Simms, Executive Director
  • Heyab Berhan

GUCCHD-UCEDD Faculty and Staff

  • Tawara D. Goode, Director
  • Rachel Brady, Director of Information Dissemination
  • Joan Christopher, Director of Community Services
  • Donna Deardorff, Administrator
  • Caroline Egan, Project Researcher
  • Toby Long, Director of Training
  • Phyllis Magrab, University-wide DD Liaison
  • Matthew Mason, Clinical Director
  • Deborah Perry, Director of Research and Evaluation


The Act also requires collaboration among UCEDDs, Protection and Advocacy Agencies and Developmental Disabilities Councils. This collaboration and partnership is referred to as the Triad in the District of Columbia.